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Tuesday, April 16, 2013

...Whether we want it to be or not...

I guess this is kind of a Part 2 to my last post ("For some of us, every day is April 2nd..."), which was basically all about being autistic and learning to embrace it.  And about 95% of the time, I do embrace it and I'm proud to be me, for better, for worse, and for crazy-weird fun :-)  But then again, there are those days like today that make up that other 5%...

Is it OK to admit that I'm struggling?

As Christians, it seems we're always told to glorify God with our words and with our testimony, and that if we sometimes question why He made us this way or is letting us go through something, we're just walking in doubt instead of in faith.  And somehow, even without saying it explicitly, the message is communicated that this is sinful and disobedient to the God who fearfully and wonderfully made us.  But at the same time, I know that as Paul said in 2 Corinthians 12:10, the times when I am weak as a person are the times when I am strongest as a Christian, because then God can work most visibly in and through me.  So...

Is it OK to admit that I'm struggling?

The past month or so has been crazy busy, what with my husband and 2 of my 3 kids having birthdays, a couple rounds of the Creeping Lung Crud, several subbing jobs, a 1980s-themed Sadie Hawkins dance at the high school (funny how I don't remember the 80s looking quite that bad... then again, I grew up in the 90s, so... o.O), car troubles, job changes, a heart attack scare, and about half a dozen other minor disasters thrown in for comedic effect... oh, and Spring Break too, for that matter.  And this past Saturday, we wrapped up our annual Month of Chaos with my daughter's 15th birthday party, where about a dozen of her best friends crammed into our little apartment to watch Literal Trailers videos and Princess Bride, play Apples to Apples, and take crazy pictures of themselves to post on Instagram.  It was actually a lot of fun, and nothing got broken or thrown this time, so I'd call it an unqualified success :-D

When I made it through Saturday night and all day Sunday without a meltdown, I figured everything was fine, great, dandy... Hey, maybe I've finally developed enough coping skills to actually manage my autism and screen out all of the excess stimuli created by 6 straight hours of 12 hollering teenagers... Maybe I'm finally cured of my autism and my world will actually turn into something normal and I can go on and give my kids the normal life I've always wanted for them...  Maybe this is the start of a new and glorious chapter in my personal history; the Fourth Great and Bountiful Beautiful-Letdownian Empire!  (See... anything can be turned into a Doctor Who reference if you try hard enough... ^_^)

And then... today hit. And the firecrackers started going off in my brain and haven't yet stopped.  And every little tick of the clock and whirr of the fan and beeeeep of the washer makes me want to scream and throw them out the window, the window, the second story window (and I'm betting that you were just there singing along with me, weren't you? ^_^)  And the only way to cope with my daughter's missing cell phone and my son's field trip permission slip and my husband wanting to spend some quality time with me was to go completely numb and just keep repeating the same semi-helpful statements of fact ("No I don't know where it is the last time I saw it you were turning it off at church...  I'm going with your brother on his field trip that day go ask your father if he can chaperone for you... I guess I'm still just really tired from the party and cleaning up afterwards...") over and over again until whatever the issue was resolved itself.  And my 10 year old fell down while selling candy bars for Cub Scouts and scraped up his knee and elbow, and a 14 year old girl disappeared on her way to school in Utah, and someone set off bombs at the Boston Marathon, and so help me, I just didn't care.  And I sat in my car while waiting for my 13 year old to come out of his Boy Scout meeting and just cried and begged God to help me get it together so that I wouldn't scare the living bejeebers out of my kids by having a nervous breakdown in front of them or running my car into a tree for no reason other than to end the madness.

Some days, I hate being this way.  

And on days like this, with the knowledge that April is Autism Awareness Month... all month long... what I wish for most is an Autism Unawareness Day.

One day where, for once, I feel like I'm completely normal and acceptable just as I am.

One day where I don't have to struggle to find the right word and people know what I mean from the words that actually come out of my mouth; a day where, when I'm trying to identify that long thin thing in the conductor's hand as he waves it over the band and I call it first a "stick", and then a "wand," nobody leans over with a snicker and says "Mom, it's Harry Potter that has a wand... That's called a baton."  I know it's a baton, dear... I just misplaced the word for a moment :-/

One day where nobody gives me the Icy Stare of Death because I've described something exactly as I see it and thrown all tact to the wind without even realizing it.

One day where I don't have to wonder what I'm supposed to feel or what I'm supposed to do when something horrific happens in a faraway place like Boston or Manhattan or Newtown, where I can understand why everyone around me is freaking out and holding candlelight vigils from 2000 miles away.

One day where I can feel like I'm fully a part of the world around me, fully engaged and fully equipped to cope with whatever happens... without having to pay the inevitable price of a day like today.

One day where I can be myself, without a mask or a persona, and know that  I won't be shattered beyond repair by the words, the gaze, or the touch of others.

What I want is one day, even if it's just one day, where I can forget completely that I'm autistic and just feel normal for a change, where I and everyone else around me can be totally unaware of my autism and not think instead that I'm just another freak.

Sigh... Yes, I know I'm whining.  I know I'm venting, and I'm using my blog as a place to do it so that maybe someone else out there who struggles with this stuff will realize they're not alone.  I'm venting here so that people will know that, maybe, sometimes, it's OK to admit that we're struggling with the role God has given us to play in this life, because when we admit how weak we are and how dark our world may seem at times, we can see more clearly what a strength and a light our God is.

Even when I'm thrashing about in the midst of a verbal temper tantrum, kicking and screaming at God and asking Him "WHY DID YOU HAVE TO GO AND MAKE ME THIS WAY????  DON'T YOU KNOW HOW MUCH I *%#*@&* HATE THIS????  DON'T YOU CARE???", I know that He made me this way for a reason because He doesn't screw up.  And I know that when I'm all cried out and ready to listen, He'll show me something to make me realize that He's got something bigger in the works than just making me feel "normal"... which is another word for average, which is another word for mediocre, which is just not acceptable for a hyperactive overachiever like me anyway ^_^

So... Is it OK to admit that I'm struggling today?  Yes, I think so.

Am I ever going to get my Autism Unawareness Day?  No, probably not.

Am I ever going to be "normal" or even feel "normal"?  Nope.  Normal is highly overrated anyway.

But hey... At least I don't have to worry about anyone impersonating me or replacing me in God's crazy plan.  Supernatural job security... I guess I can live with that ^_^

And now for today's video...  This has been one of my all-time favorite songs for about 17 years now, one of those songs that just makes me stop whatever I'm doing and just shut up and listen (thankfully, it doesn't often come on my iPod while I'm driving...)  It just seemed like a good note to leave this post on, so...